Even as I type this my fingers are sore, by back hurts and my knees are in complete agony.
HOWEVER, my doctor will not change my pain killers. I have painstakenly said that what I am taking isn't helping but due to my age they will not change them.
Yes I am 26, but any 26 year old shouldn't be experiencing the pain I am with arthritis and HMS. It's getting to the point where I want to go private but being a Student I cannot afford it. So I am stuck on what I am taking until I cannot walk it seems.
I just don't know where to look nowadays. I feel like I am talking to a brick wall when talking about the pain I am experiencing, Over past few days at College I have has to write nearly 1000 words in an essay, and because the LSP folk haven't mentioned about me using a laptop, I HAD to write.
I will tell you, I am on a low dosage of Co-Codamol, both me and my mum feel this isn't helping so are pushing for new pain killers, but the GP I see doesn't want to budge, I ask what happened to the patient rights here, I am on pain killers I feel are NOT helping, shouldn't they see about trying to help me, travelling 90 miles to College in Aberdeen doesn't help much but the fact I am in pain means I can hardly get up there to look for a flat in the area, so its a losing situation I am being put in by my GP and the pain.
I can however understand the problems with pain killers, they can become addictive, but to be fair, I need them all the time anyways to deal with my pain don't I so it is a catch 2 situation but really, the pain needs to be dealt with more than addiction right now (considering I have no addictions). Is my doctor RIGHT to refuse me or should they look at the future to possibly stop any other interactions with the arthritis, scoliosis and HMS from harming me?
Thursday, October 13, 2011
Monday, September 26, 2011
Day one of wearing Tee.
Well, today I wore my t shirt to Aberdeen at College and well, I must say I did get a few heads turning.
I felt so proud today wearing it, as I wasnt able to wear it to the 5K Challenge after I decided that taking part at the moment wasn't a good Idea, well I will be wearing my tee throughout my weightloss challenge (obviously not all the time, it will get washed). I made a couple of modifications to my shirt and well, I am happy with them. I love what I have done, sorry about the changes to it but it was a bittie boring :D. The logo is still 100% visable :D.
As silly old me (actually I only had two hours sleep last night) forgot my camera, amongst other things I really needed, I have only got the picture I took this morning and the picture I took of me at my PC showing my blog page.
Below is my Off taken self portrait!
Sunday, September 25, 2011
Raising the Awareness of Arthritis Care....
Well, I thought to help raise the knowledge of Arthritis Care, I would wear my T-Shirt that I was given to wear for the 5K all next week out and about.
I have chosen to do this because I am very well aware that many people out there don't know that the charity/organisation exists. I have also learned this after speaking to a few of my class mates at College who exclaim that they didn't know arthritis affected younger people, however there has been a couple knowing that you can be born with arthritis.
Speaking of Pain, my pain has been flaring up a lot lately, I think its the cold weather, but who knows. Quite sore at the minute, left arm still goes numb a lot :(. My long walk from Union Street to the College, well it's not really long, only feels it with the pain, bring on many pain, but I cant even get a bus from Union Street to the College even though it is possible because First Aberdeen work on a Exact Money only policy, I have a bus pass (unirider) for Stagecoach, but cant use it on First buses and well no Stagecoach bus goes up by the college, well the Airport bus does, but doesn't stop outside it.
Couple of Friday's ago, the College decided to have a Fire Drill, I was in my class on the 6th Floor and well, walking down the stairs was OK, but I was shocked and disgusted at a lot of students because they were taking up most of the lift space. and because my disability is very much unseen, they didn't know I needed it, so to get back to class it had to walk up the stairs to the 6th floor, I am going to be in contact with my Guidance tutor and Course Leader about this as its not acceptable, I was in so much agony when I got home that night, and really I am still feeling a lot of pain in my knees from it as my codeine doesn't seem to be having any effect any more, so back to the doctors for me.
Just to clarify I sent the email to them and well now awaiting reply, I have my Course Leader tomorrow afternoon for a class so hopefully she will have seen the email and will have some idea to what I can do in the future if this happens again. I mean to walk up six floors with already bad knees is not acceptable when there is two lifts that can be used but keep getting used by students who can most likely use the stairs better than I can. I will keep you all updated on what is suggested to me.
I have my first assessment at College next week and couldn't believe it when I found out that on my LSP (Learning Support Plan), I didn't have that I could use a laptop for assessments when in fact I thought I did. That has been seen to though, but I still have to attempt it handwritten, this should be fun. I better not fail or I will cry (not really), but if I do fail, and need a second attempt, I hope I will be able to use a laptop.
Well boys, girls, women, men, aliens, stars and what not, I shall be leaving this blog today, and I hope that I get some people asking what my T-Shirt is all about at College this week :).
Chow for now!
Pamie
I have chosen to do this because I am very well aware that many people out there don't know that the charity/organisation exists. I have also learned this after speaking to a few of my class mates at College who exclaim that they didn't know arthritis affected younger people, however there has been a couple knowing that you can be born with arthritis.
Speaking of Pain, my pain has been flaring up a lot lately, I think its the cold weather, but who knows. Quite sore at the minute, left arm still goes numb a lot :(. My long walk from Union Street to the College, well it's not really long, only feels it with the pain, bring on many pain, but I cant even get a bus from Union Street to the College even though it is possible because First Aberdeen work on a Exact Money only policy, I have a bus pass (unirider) for Stagecoach, but cant use it on First buses and well no Stagecoach bus goes up by the college, well the Airport bus does, but doesn't stop outside it.
Couple of Friday's ago, the College decided to have a Fire Drill, I was in my class on the 6th Floor and well, walking down the stairs was OK, but I was shocked and disgusted at a lot of students because they were taking up most of the lift space. and because my disability is very much unseen, they didn't know I needed it, so to get back to class it had to walk up the stairs to the 6th floor, I am going to be in contact with my Guidance tutor and Course Leader about this as its not acceptable, I was in so much agony when I got home that night, and really I am still feeling a lot of pain in my knees from it as my codeine doesn't seem to be having any effect any more, so back to the doctors for me.
Just to clarify I sent the email to them and well now awaiting reply, I have my Course Leader tomorrow afternoon for a class so hopefully she will have seen the email and will have some idea to what I can do in the future if this happens again. I mean to walk up six floors with already bad knees is not acceptable when there is two lifts that can be used but keep getting used by students who can most likely use the stairs better than I can. I will keep you all updated on what is suggested to me.
I have my first assessment at College next week and couldn't believe it when I found out that on my LSP (Learning Support Plan), I didn't have that I could use a laptop for assessments when in fact I thought I did. That has been seen to though, but I still have to attempt it handwritten, this should be fun. I better not fail or I will cry (not really), but if I do fail, and need a second attempt, I hope I will be able to use a laptop.
Well boys, girls, women, men, aliens, stars and what not, I shall be leaving this blog today, and I hope that I get some people asking what my T-Shirt is all about at College this week :).
Chow for now!
Pamie
Wednesday, September 21, 2011
Sore sore and more sore
I think I need to find a flat in Aberdeen soon.
Travelling is really taking its toll on my joints, last night had massively achey legs and arms, I took my usual meds, seemed to work for a little while but quickly faded.
However, even with all of this, college is going well. Had our first fire drill on Friday (last week), had to walk down SIX floors, oh and walk BACK UP the six floors. I wasn't able to use the life because of alot of LAZY students, doesn't bode well, but I am going to have a chat with my course tutor about it as I find it hard to walk up the stairs as it is at the moment. I am in two minds about seeing my GP about this as well, its causing me alot of agony, distress and discomfort.
I cannot wait until 7th (payday folks :D). But also soon it will be my older brothers 30th birthday, I bought two tickets to the home match at Pittodrie (Aberdeen v Dunfermline), which is on the 30th September, which is greatly my brothers birthday. Also on the 7th October is his Graduation, so proud of him, managing to pass his HNC even with alot of things going about in our family, I think its my turn now since I am doing a HND haha.
I need to start getting involved in alot of things now I am running out of things to do (apart from studying), and now I am settled in college I get start my plans. :). Well, I have to leave it there, my fingers are becoming sore. I shall blog again soon folks :)
Pamie
Thursday, August 11, 2011
Weight Loss Challenge
I am taking part in a weight loss challenge to raise funds for Arthritis Care in Scotland. I made this decision after I decided I wouldn't be travelling to London next month after all the riots in the last week, they may have died down but who knows if they will start up again soon.
I was weighed at the Nurse yesterday when I went for my lovely 3 yearly visit to them (sucks being a woman at times), and I was horrified to see I was sitting at 14 stone..... Now at 5ft 8in I should be between 10 and 11 stone, so I am making a pledge to get my ass off the seat (which I suppose I will be doing at college lol) and loosing up to 3 stone by my 27th Birthday (01/02/2012).
I think I can do it, no in fact I CAN do it :). Not only will this help Arthritis Care in Scotland, but it will also help me in the long run as well.
I am looking to hit the gym at college and play for Aberdeen City Ladies FC. I just hope all goes well for me. I will be taking proper actions in this, and not cheating in any form. I will be seeking medical advise whenever I feel concerned about something. So please, don't worry about me as I do this, I will be keeping a Diary and blogging on my other blogger site and also this one :).
If you wish to sponsor me you can do at http://www.justgiving.com/pamela-north-east-scotland you can also text a donation by texting ARTH85 and your donation amount e.g. ARTH85 £2 to 70070 *note that you can donate either £1, £2, £3, £4, £5 & £10 via text.
Until me next weight loss challenge update. Later folkies :)
Pamie
I was weighed at the Nurse yesterday when I went for my lovely 3 yearly visit to them (sucks being a woman at times), and I was horrified to see I was sitting at 14 stone..... Now at 5ft 8in I should be between 10 and 11 stone, so I am making a pledge to get my ass off the seat (which I suppose I will be doing at college lol) and loosing up to 3 stone by my 27th Birthday (01/02/2012).
I think I can do it, no in fact I CAN do it :). Not only will this help Arthritis Care in Scotland, but it will also help me in the long run as well.
I am looking to hit the gym at college and play for Aberdeen City Ladies FC. I just hope all goes well for me. I will be taking proper actions in this, and not cheating in any form. I will be seeking medical advise whenever I feel concerned about something. So please, don't worry about me as I do this, I will be keeping a Diary and blogging on my other blogger site and also this one :).
If you wish to sponsor me you can do at http://www.justgiving.com/pamela-north-east-scotland you can also text a donation by texting ARTH85 and your donation amount e.g. ARTH85 £2 to 70070 *note that you can donate either £1, £2, £3, £4, £5 & £10 via text.
Until me next weight loss challenge update. Later folkies :)
Pamie
Sunday, July 31, 2011
Where on earth has this year gone?
Well it's a year since my 'HMS' diagnosis and that I was told I would develop 'OA' if I didn't get back into exercising.
It is also just over 3 weeks until I move so you guessed it, tomorrow is 'AUGUST!'. Felt like February yesterday :-/, but seriously where has this year gone, I guess I have been busy blogging about my life too much to even notice the speed. I kind of hope 2012 isn't as fast considering its meant to "end" on the 21st December lol.
I am sitting here watching The Munsters, left arm is in considerable pain, so really should be resting it and not typing this blog but meh, my work has to get done. Fingers are slightly sore aswell, but come to think about it I was sore all of last night, didnt get to sleep until 5am :-(. Didn't get out to play footy the other night because my older brother couldn't be bothered, football isnt fun on your own.
Well aside from preparing for my move, I have just been chatting away to friends on twitter and facebook. Also to my good friend who is known only as 'Beyond' on MSN, who says he is proud of the acheivements I am making, dunno what he means though ha ha. Oh just realised money day tomorrow (or tonight), I suppose I better reserve that mobile for the folks and buy my football boots tonight since they 'tried' to take the money on Friday when in fact the boots aint on general sale until tomorrow, hate it when that happens.
So here is hoping the footy helps the knee pain, no idea what will help the other pain, but hey, 'NHS Grampian' will hopefully work on it all :).
Now I have nooooo Idea what to do today, mum is working and well, dad and bro will be working on 'Trainz', if you are wondering what it is it's a train simulator, can't get them off it :-/, dad being just diagnosed with arthritis himself shouldn't really be sitting at the PC for long times, need to get him out more, he has a bus pass so I don't see why he don't just jump on a bus and go somewhere, I know money is an issue but ye don't always need money to have a good day out, you take your own drink from home etc... Och well.
I also got a date through for my DLA Claim Tribunal, its in September, so will have to do a bit of travelling for that as it is being held in 'Kirkcaldy', you would think I wouldn't be moaning with all the travelling I have done this year already.
It's 6 weeks until the Adidas Women's 5K Challenge in Hyde Park, to which I am competing in to raise funds for Arthritis Care Scotland, if you want to donate just ask how to and I will give you the how to details :).
OK, that's it for July and I will see you all in August.
Pamie
It is also just over 3 weeks until I move so you guessed it, tomorrow is 'AUGUST!'. Felt like February yesterday :-/, but seriously where has this year gone, I guess I have been busy blogging about my life too much to even notice the speed. I kind of hope 2012 isn't as fast considering its meant to "end" on the 21st December lol.
I am sitting here watching The Munsters, left arm is in considerable pain, so really should be resting it and not typing this blog but meh, my work has to get done. Fingers are slightly sore aswell, but come to think about it I was sore all of last night, didnt get to sleep until 5am :-(. Didn't get out to play footy the other night because my older brother couldn't be bothered, football isnt fun on your own.
Well aside from preparing for my move, I have just been chatting away to friends on twitter and facebook. Also to my good friend who is known only as 'Beyond' on MSN, who says he is proud of the acheivements I am making, dunno what he means though ha ha. Oh just realised money day tomorrow (or tonight), I suppose I better reserve that mobile for the folks and buy my football boots tonight since they 'tried' to take the money on Friday when in fact the boots aint on general sale until tomorrow, hate it when that happens.
So here is hoping the footy helps the knee pain, no idea what will help the other pain, but hey, 'NHS Grampian' will hopefully work on it all :).
Now I have nooooo Idea what to do today, mum is working and well, dad and bro will be working on 'Trainz', if you are wondering what it is it's a train simulator, can't get them off it :-/, dad being just diagnosed with arthritis himself shouldn't really be sitting at the PC for long times, need to get him out more, he has a bus pass so I don't see why he don't just jump on a bus and go somewhere, I know money is an issue but ye don't always need money to have a good day out, you take your own drink from home etc... Och well.
I also got a date through for my DLA Claim Tribunal, its in September, so will have to do a bit of travelling for that as it is being held in 'Kirkcaldy', you would think I wouldn't be moaning with all the travelling I have done this year already.
It's 6 weeks until the Adidas Women's 5K Challenge in Hyde Park, to which I am competing in to raise funds for Arthritis Care Scotland, if you want to donate just ask how to and I will give you the how to details :).
OK, that's it for July and I will see you all in August.
Pamie
Friday, July 29, 2011
Painful week going by
Continuing from my last blog, well, this week has been pretty painful.
I am not sure if the weather is involved or if it is my stress levels, either way it's being a pain (see what I did).
I went out today with my mum, thinking I would be paid today as it is a Bank Holiday on Monday, netehhhh, no money, pretty naffed off, I hope I get paid tomorrow then I can buy my football boots, the phone for my bro and well top my phone up.
I haven't been taking my anti-depressants (bad I know), I will start them again on Monday as I need to be "alive" for my move, which is happening in nearly 3 weeks, ye know living like this as a 26 year old is hard, I should be out there playing my beloved football (I am slowly returning to it), getting fit and well just generally being a typical young adult, instead I am shutting myself indoors, why, because people do not understand I suffer from a condition that I cant control, I have no control over HMS or arthritis, none what so ever, if I am sore then I am sore, if I aint, then I aint, it is how it rolls for me.
I know I will be seeking further medical advice when I move to Aberdeen, because I do not want to live on a tablet that is not even trying to help me any more. I think this is what is wrong with the NHS, they do not want to try anything because they think the patient will be fine, well it is with NHS Fife by looks of things, I can understand them not wanting to up my dosage any more, but maybe trying a different medication will help, I really need to be in fit shape for college, mainly because I want to move onto university afterwards to "try" and obtain my BA Journalism, but without the right medical care and attention I really do not think this will happen. I do not want to fail I have come this far and well, it will all be just a waste and why, because I wasnt given the correct treatment at the correct time.
I think I am going to have a kick around the back garden with my older brother, but I have to say that I am looking forward to my move and I look forward to letting you all know on the day about it all :). I shall be off now, chow.
Pamie
I am not sure if the weather is involved or if it is my stress levels, either way it's being a pain (see what I did).
I went out today with my mum, thinking I would be paid today as it is a Bank Holiday on Monday, netehhhh, no money, pretty naffed off, I hope I get paid tomorrow then I can buy my football boots, the phone for my bro and well top my phone up.
I haven't been taking my anti-depressants (bad I know), I will start them again on Monday as I need to be "alive" for my move, which is happening in nearly 3 weeks, ye know living like this as a 26 year old is hard, I should be out there playing my beloved football (I am slowly returning to it), getting fit and well just generally being a typical young adult, instead I am shutting myself indoors, why, because people do not understand I suffer from a condition that I cant control, I have no control over HMS or arthritis, none what so ever, if I am sore then I am sore, if I aint, then I aint, it is how it rolls for me.
I know I will be seeking further medical advice when I move to Aberdeen, because I do not want to live on a tablet that is not even trying to help me any more. I think this is what is wrong with the NHS, they do not want to try anything because they think the patient will be fine, well it is with NHS Fife by looks of things, I can understand them not wanting to up my dosage any more, but maybe trying a different medication will help, I really need to be in fit shape for college, mainly because I want to move onto university afterwards to "try" and obtain my BA Journalism, but without the right medical care and attention I really do not think this will happen. I do not want to fail I have come this far and well, it will all be just a waste and why, because I wasnt given the correct treatment at the correct time.
I think I am going to have a kick around the back garden with my older brother, but I have to say that I am looking forward to my move and I look forward to letting you all know on the day about it all :). I shall be off now, chow.
Pamie
Tuesday, July 26, 2011
When in pain........
Don't try and be helpful and make your parents bed!
Especially when you are doing it all yourself, they have a heavy mattress which will kill you trying to lift it :-/, it may be a good deed, but when you don't really get rewarded for it in any way (just a thank you) then its kind of dishearting :-(.
But hey, I rested up the rest of the night after my good deed. It is now officially 3 weeks and 6 days until I move and well, stress levels are rising into the nearest black hole in the universe lol. Off to doctor today to see what's what with my mind etc... well I know I lost it a wee while back but I am actually hoping to find it somewhere ha-ha.
I can't wait until September, 5K Challenge on the 11th, first full month of College, Slowly taking donations for Arthritis Care Scotland (fancy donating go to www.justgiving.com/pamela-anne-north-east-scotland or text away to ARTH77, don't forget to add your donation amount after it e.g. ARTH77 £5 to 70070). Also hope to be starting my volunteering with ACS, kind of hope they can help me get the word of Arthritis and HMS (they are linked) out into Schools and Colleges as many young people still only think of Arthritis as a 'old people disease' something which my mum, who has been a trained nurse for 33 years, only notices too well. I'm looking to do information days at Schools (with much help of course), I think it would be good to do some in the work place because of work experience's etc etc etc etc etc (I really need to stop saying that.).
Well I am going to sign off just now and well, my next blog will be on my last week in Falkland and my first week in Aberdeen.... Here's to 22nd August guys n gals :-).
See you all soon
Pamie
*Update*
Still very much sore. Been resting like mad, well trying to, had to sign on yesterday really wasn't feeling up to it but I had to. Left arm has been quite sore, will probably be out of my deep freeze gel by the end of the week. More money to be spent on helping the pain as the meds don't really seem to be doing much at the moment. The again the stress I am under won't be helping either. Slowly getting there. Until next week folks.
Especially when you are doing it all yourself, they have a heavy mattress which will kill you trying to lift it :-/, it may be a good deed, but when you don't really get rewarded for it in any way (just a thank you) then its kind of dishearting :-(.
But hey, I rested up the rest of the night after my good deed. It is now officially 3 weeks and 6 days until I move and well, stress levels are rising into the nearest black hole in the universe lol. Off to doctor today to see what's what with my mind etc... well I know I lost it a wee while back but I am actually hoping to find it somewhere ha-ha.
I can't wait until September, 5K Challenge on the 11th, first full month of College, Slowly taking donations for Arthritis Care Scotland (fancy donating go to www.justgiving.com/pamela-anne-north-east-scotland or text away to ARTH77, don't forget to add your donation amount after it e.g. ARTH77 £5 to 70070). Also hope to be starting my volunteering with ACS, kind of hope they can help me get the word of Arthritis and HMS (they are linked) out into Schools and Colleges as many young people still only think of Arthritis as a 'old people disease' something which my mum, who has been a trained nurse for 33 years, only notices too well. I'm looking to do information days at Schools (with much help of course), I think it would be good to do some in the work place because of work experience's etc etc etc etc etc (I really need to stop saying that.).
Well I am going to sign off just now and well, my next blog will be on my last week in Falkland and my first week in Aberdeen.... Here's to 22nd August guys n gals :-).
See you all soon
Pamie
*Update*
Still very much sore. Been resting like mad, well trying to, had to sign on yesterday really wasn't feeling up to it but I had to. Left arm has been quite sore, will probably be out of my deep freeze gel by the end of the week. More money to be spent on helping the pain as the meds don't really seem to be doing much at the moment. The again the stress I am under won't be helping either. Slowly getting there. Until next week folks.
Friday, July 22, 2011
A wee weekly updateroo
Well I am giving you all a wee weekly updateroony. As I was lying in me bed, slightly sore, it dawned on me..... It is now officially one month until I move my little beehind to Aberdeen for College.
I got my induction day through - 18th August 2011 at 10am, thinking I could manage a day of it and just come home, I booked a bus from Dundee to Aberdeen, leaving at 6:10am (O.O), and coming back at 5:30pm, however, on a day out to Aberdeen with my mum and Granny and after being sore from everything (walking and sitting on thee bus), I decided to change it, I'm now heading up the day before, staying at my Granny's and coming home the day after the induction. Makes more sense doesn't it :).
Well a few things have happened, family news and what not, wasn't so great though. Went through to Glasgow with my dad on Tuesday as my Great Aunt is ill at the moment, went to see how she is doing and to be fair, she is holding on such n such, must be a Carpenter thing lol. But hey ho, just having to keep a little eye on dad at the moment, but he is coping :).
I have to announce that my DLA claim is now going to a tribunal, cheeky people ain't they. The stupid thing is it won't be seen or heard of until DECEMBER!!!!, I'm gonna be living away from home then, to be fair I don't think it is right that I have to wait this long, or anyone would have to wait that long for a yes or no answer, mind you, I have said I want my side of the story heard. Being in pain is soooo not fun, having crutches to use when I am in agony isn't fun either. I want to get back to the usual me, playing football. Actually by then I probably will be back playing, now my fitness is slowly coming back, it's pretty daft ain't it, by the time my claim gets seen I could be feeling better ha-ha. But anyway, I am still plodding along and getting myself sorted for College (ummm, I haven't actually started yet).
Ah well folks, I think this basically all that has been happening in my week. Wish more exciting stuff would happen. Oh well, until next time guys n gals :).
Pamie
:)
I got my induction day through - 18th August 2011 at 10am, thinking I could manage a day of it and just come home, I booked a bus from Dundee to Aberdeen, leaving at 6:10am (O.O), and coming back at 5:30pm, however, on a day out to Aberdeen with my mum and Granny and after being sore from everything (walking and sitting on thee bus), I decided to change it, I'm now heading up the day before, staying at my Granny's and coming home the day after the induction. Makes more sense doesn't it :).
Well a few things have happened, family news and what not, wasn't so great though. Went through to Glasgow with my dad on Tuesday as my Great Aunt is ill at the moment, went to see how she is doing and to be fair, she is holding on such n such, must be a Carpenter thing lol. But hey ho, just having to keep a little eye on dad at the moment, but he is coping :).
I have to announce that my DLA claim is now going to a tribunal, cheeky people ain't they. The stupid thing is it won't be seen or heard of until DECEMBER!!!!, I'm gonna be living away from home then, to be fair I don't think it is right that I have to wait this long, or anyone would have to wait that long for a yes or no answer, mind you, I have said I want my side of the story heard. Being in pain is soooo not fun, having crutches to use when I am in agony isn't fun either. I want to get back to the usual me, playing football. Actually by then I probably will be back playing, now my fitness is slowly coming back, it's pretty daft ain't it, by the time my claim gets seen I could be feeling better ha-ha. But anyway, I am still plodding along and getting myself sorted for College (ummm, I haven't actually started yet).
Ah well folks, I think this basically all that has been happening in my week. Wish more exciting stuff would happen. Oh well, until next time guys n gals :).
Pamie
:)
Wednesday, July 13, 2011
15 June - 13 July 2011
Why hellooo everyone.
Little late on the blogging front, I have been a busy bee, preparing for Sonisphere last weekend and the sponsored walk I was taking part in last week. And I am also preparing for the Women's Adidas 5K Challenge.
My pain threshold has been relatively quiet of late. I guess I have been doing more than I normally do ha-ha However, there has been a few flare ups of the old HMS pain and arthritis pain in my shoulder.
So I guess not much to really blog about apart from how the walk and 'Sonisphere' went.
The walk went OK, a few teething problems on it but all was sorted. I used my crutches that day as it was a 3 mile walk from the STV Studios to Pittodrie Stadium in Aberdeen. So far we have raised £75 for Bullying UK and £35 for HMSA.
Two days after the walk I attended the 'Sonisphere Festival' in Knebworth, Stevenage. 4 days camping, as you know for arthritis sufferers and bendy people that is hard going, but I managed it. Thursday was the day we (me and my friends, Graeme, Ian and GG) travelled south for the event. Took us a good few hours to get there, we ended up pitching our tents in the dark (horary for pop up tents), I ended up sharing a tent with GG, wasn't too bad cause I had company lol, had to be male company though eh!.
Friday was a good day so to speak, I did however, fall in Graeme's tent and break my right thumb and give myself a stinking bruise on my left leg. Thumbs still strapped up as we speak, how I am managing to type is beyond me, but hey ho, I'm just magic :), we had torrential rain that day, to which I ended up catching a cold. Saw my most favourite bands on Friday, Megadeth and Metallica, and that was even with a visit to the festival hospital. Saturday was a very quiet day for us, not many bands on Graeme and I liked, so we spent a lot of time in the camp site, just gossiping, there was only one band I liked and that was WEEZER, I slept most of Saturday after Weezer. Sunday was the last day, I managed to get a couple of pictures taken, which are now proudly on my Facebook :). Monday was coming home day, had to be out the camp site by 12pm, because of the sun burn I managed to acquire on Sunday, I had trouble carrying things and well, having anything on my skin lol.
I must have arrived back in Falkland at nearly 9pm. Very very long day that was.
Spend Tuesday in my bed to try and rid myself of this cold and what not, today was job centre day, I signed on and as usual no jobs going :(. But hey ho, 5 weeks and 6/5 days until I move to Aberdeen and start my new life in the big ol' City of Aberdeen.
Well, that is about it for me at the moment. I look forward to intriguing you all with my next blog, which I know will be about my preparations for moving to Aberdeen. Look forward to see ya all then :).
Pamie
Little late on the blogging front, I have been a busy bee, preparing for Sonisphere last weekend and the sponsored walk I was taking part in last week. And I am also preparing for the Women's Adidas 5K Challenge.
My pain threshold has been relatively quiet of late. I guess I have been doing more than I normally do ha-ha However, there has been a few flare ups of the old HMS pain and arthritis pain in my shoulder.
So I guess not much to really blog about apart from how the walk and 'Sonisphere' went.
The walk went OK, a few teething problems on it but all was sorted. I used my crutches that day as it was a 3 mile walk from the STV Studios to Pittodrie Stadium in Aberdeen. So far we have raised £75 for Bullying UK and £35 for HMSA.
Two days after the walk I attended the 'Sonisphere Festival' in Knebworth, Stevenage. 4 days camping, as you know for arthritis sufferers and bendy people that is hard going, but I managed it. Thursday was the day we (me and my friends, Graeme, Ian and GG) travelled south for the event. Took us a good few hours to get there, we ended up pitching our tents in the dark (horary for pop up tents), I ended up sharing a tent with GG, wasn't too bad cause I had company lol, had to be male company though eh!.
Friday was a good day so to speak, I did however, fall in Graeme's tent and break my right thumb and give myself a stinking bruise on my left leg. Thumbs still strapped up as we speak, how I am managing to type is beyond me, but hey ho, I'm just magic :), we had torrential rain that day, to which I ended up catching a cold. Saw my most favourite bands on Friday, Megadeth and Metallica, and that was even with a visit to the festival hospital. Saturday was a very quiet day for us, not many bands on Graeme and I liked, so we spent a lot of time in the camp site, just gossiping, there was only one band I liked and that was WEEZER, I slept most of Saturday after Weezer. Sunday was the last day, I managed to get a couple of pictures taken, which are now proudly on my Facebook :). Monday was coming home day, had to be out the camp site by 12pm, because of the sun burn I managed to acquire on Sunday, I had trouble carrying things and well, having anything on my skin lol.
I must have arrived back in Falkland at nearly 9pm. Very very long day that was.
Spend Tuesday in my bed to try and rid myself of this cold and what not, today was job centre day, I signed on and as usual no jobs going :(. But hey ho, 5 weeks and 6/5 days until I move to Aberdeen and start my new life in the big ol' City of Aberdeen.
Well, that is about it for me at the moment. I look forward to intriguing you all with my next blog, which I know will be about my preparations for moving to Aberdeen. Look forward to see ya all then :).
Pamie
Tuesday, June 14, 2011
Rockness (Before and After)
Well, I went to Rockness on 10th June 2011 and well, that night I twisted my knee on the very uneven ground and I can assure you, the treatment I received at the Hospital tent was appalling. The Red Cross however were FAB!!!!
I'm now home again and well, my mum went biserk at how the bandage was put on my knee, she couldnt beleive it in the 33 years she has been nursing.
I am resting up now as I am attending the Sonisphere festival on 8th July - 10th July, luckily this time I will be with a big group of friends.
I'm now home again and well, my mum went biserk at how the bandage was put on my knee, she couldnt beleive it in the 33 years she has been nursing.
I am resting up now as I am attending the Sonisphere festival on 8th July - 10th July, luckily this time I will be with a big group of friends.
Camping, Gigs and Festivals For Joint Hypermobility and Arthritis Sufferers
Just thought I would add this, I have recently come back from Rockness 2011 Festival in Inverness, and well I found out some good tips for camping/going to festivals with HMS.
- ALWAYS pack a first aid kit
- Have bandages/tube grip
- Never camp on your own, always be in a group
- Make sure the festival or event you are camping at knows about HMS (I didn't and was greeted with a horrid medic)
- Ask for help if you need it, many people don't mind helping
- Buy a pop up tent, 100 times easier than a normal tent.
- DON'T mix with the crowds, who knows what can happen.
- Always stay with who you are there with
- Ask a member of the group to be your "No 2" so to speak
As for normal one night gigs, always let security know, then if you fall over they wont always claim its' down to alcohol.
If you have medication let them know you are carrying it as well.
I am heading to Sonisphere in July and well, as I have already fallen at home and at Rockness, I am resting as much as I can, but I have told my friends that they will have to be a 2nd pair of eyes for me etc (when they are sober). I have emailed the organisers of the festival to let them know I suffer from HMS but I am the only member of my group who has it.
- ALWAYS pack a first aid kit
- Have bandages/tube grip
- Never camp on your own, always be in a group
- Make sure the festival or event you are camping at knows about HMS (I didn't and was greeted with a horrid medic)
- Ask for help if you need it, many people don't mind helping
- Buy a pop up tent, 100 times easier than a normal tent.
- DON'T mix with the crowds, who knows what can happen.
- Always stay with who you are there with
- Ask a member of the group to be your "No 2" so to speak
As for normal one night gigs, always let security know, then if you fall over they wont always claim its' down to alcohol.
If you have medication let them know you are carrying it as well.
I am heading to Sonisphere in July and well, as I have already fallen at home and at Rockness, I am resting as much as I can, but I have told my friends that they will have to be a 2nd pair of eyes for me etc (when they are sober). I have emailed the organisers of the festival to let them know I suffer from HMS but I am the only member of my group who has it.
Monday, June 6, 2011
9 May 2011 - 06 June 2011
What fun I have been having since my last blog, got lots to catch up on and it's only the beginning of June.
Well, after my blog on the 8 May 2011 some STRANGE things have happened.
On the 12th May, myself and my fellow HMSA Fife Group colleague went to Aberdeen to check out the suites at Pittodrie Stadium for an Information Day we are planning to hold in aid of HMSA and Arthritis Care. Everything seems all systems go with it, just need to figure out how to pay for it (eek), but we have it in hand.
Then on Friday the 13th (of all days), my 'Joint Hypermobility' decided to attack and well, I collapsed in a heap falling down the last 4 of the stairs in our house (my bedroom is upstairs of all places), so any way, my old brother Michael came to my rescue (mum, sat in living room and my dad was on my brothers PC), and well he 'tried' to help but to be all honest I think he made it worse, he moved my left leg as I basically landed on it underneath me (which did hurt by the way), after his "helping" he took me into the living room and well at that point I could still walk on it, however, later on (maybe an hour) after the fall, I started to feel alot of pain in my knee, tried to move my leg but I couldn't, so I shouted on my mum (who has been trained as a nurse for 33 years) to come and take a quick look at it, she didn't like the look, so off to A&E at the Victoria Hospital in Kirkcaldy. After a very long 2 1/2 hours there, I was seen, still couldn't move my left leg or bend my knee, life it or well do anything with it really, so the nurse, who ironically has the same first name as my mum, strapped it up with tube-grip and gave me crutches, so that was that. The rest of the day went OK, although nearly falling with the crutches a couple of times didn't help much. And so my period of rest began, with a few bit and bobs in between.
Nothing much really happened in the rest of May, just resting my knee, and preparing for a Sponsored walk we (the HMSA Fife Group) are doing, and no I am not plugging it, on the 5th July, OK maybe I am, but we are doing it for HMSA and Bullying UK, two of the three charities close to the Group (Arthritis Care being the 3rd).
We are now in June as I write this part of the blog (the 6th to be precise), and it is only FOUR DAYS UNTIL ROCKNESS!!! (when you read this it will have been and gone for another year and I will have told you all about it), yes I am going to my first ever festival on Friday with my friend Lyndsay, we are both looking forward to it, it better be worth the £149 spent on my ticket (Lyndsay's was free hehe), I am sure to tell you all about it when I get home though, imagine going to a festival when you have arthritis and joint hypermobility, oh well. I have STILL to buy a sleeping bag and a mat though, I'm such a last minute person, just ask my mum :-/.
We are STILL in the process of raising the awareness of Joint Hypermobility and its wonderful connections to other conditions, please if you want to help contact me on PamieAFC1903@gmail.com.
Oh I have something to hastily add, if you have the time and cash please don't forget to sponsor me in the Women's 5K Challenge which is taking place in Hyde Park, London on Sunday 11 September, I am raising £300 for Arthritis Care and your donations will help to go a long way in Scotland.
Until my next blog....... adios
Pamela
Well, after my blog on the 8 May 2011 some STRANGE things have happened.
On the 12th May, myself and my fellow HMSA Fife Group colleague went to Aberdeen to check out the suites at Pittodrie Stadium for an Information Day we are planning to hold in aid of HMSA and Arthritis Care. Everything seems all systems go with it, just need to figure out how to pay for it (eek), but we have it in hand.
Then on Friday the 13th (of all days), my 'Joint Hypermobility' decided to attack and well, I collapsed in a heap falling down the last 4 of the stairs in our house (my bedroom is upstairs of all places), so any way, my old brother Michael came to my rescue (mum, sat in living room and my dad was on my brothers PC), and well he 'tried' to help but to be all honest I think he made it worse, he moved my left leg as I basically landed on it underneath me (which did hurt by the way), after his "helping" he took me into the living room and well at that point I could still walk on it, however, later on (maybe an hour) after the fall, I started to feel alot of pain in my knee, tried to move my leg but I couldn't, so I shouted on my mum (who has been trained as a nurse for 33 years) to come and take a quick look at it, she didn't like the look, so off to A&E at the Victoria Hospital in Kirkcaldy. After a very long 2 1/2 hours there, I was seen, still couldn't move my left leg or bend my knee, life it or well do anything with it really, so the nurse, who ironically has the same first name as my mum, strapped it up with tube-grip and gave me crutches, so that was that. The rest of the day went OK, although nearly falling with the crutches a couple of times didn't help much. And so my period of rest began, with a few bit and bobs in between.
Nothing much really happened in the rest of May, just resting my knee, and preparing for a Sponsored walk we (the HMSA Fife Group) are doing, and no I am not plugging it, on the 5th July, OK maybe I am, but we are doing it for HMSA and Bullying UK, two of the three charities close to the Group (Arthritis Care being the 3rd).
We are now in June as I write this part of the blog (the 6th to be precise), and it is only FOUR DAYS UNTIL ROCKNESS!!! (when you read this it will have been and gone for another year and I will have told you all about it), yes I am going to my first ever festival on Friday with my friend Lyndsay, we are both looking forward to it, it better be worth the £149 spent on my ticket (Lyndsay's was free hehe), I am sure to tell you all about it when I get home though, imagine going to a festival when you have arthritis and joint hypermobility, oh well. I have STILL to buy a sleeping bag and a mat though, I'm such a last minute person, just ask my mum :-/.
We are STILL in the process of raising the awareness of Joint Hypermobility and its wonderful connections to other conditions, please if you want to help contact me on PamieAFC1903@gmail.com.
Oh I have something to hastily add, if you have the time and cash please don't forget to sponsor me in the Women's 5K Challenge which is taking place in Hyde Park, London on Sunday 11 September, I am raising £300 for Arthritis Care and your donations will help to go a long way in Scotland.
Until my next blog....... adios
Pamela
Sunday, May 8, 2011
What's happened since 4th April.
Well, I would like to say that a lot has happened since my last blog. I was finally given a physiotherapist appointment which was on the 3rd May.
During the time I was waiting the pain has been coming and going, worst of it is, the pain in my knees now affect me more, I get sore just walking down the stairs to the living room, when I was standing still and when I am sitting at the PC.
Pain is starting to develop in my right elbow and my fingers with the amount of typing I am doing, trying to raise the awareness of Joint Hypermobility Syndrome in Fife and Grampian as many of us are left on our own to deal with the pain. Been in preparation for the Women's 5K Challenge in which I will be raising money for Arthritis Care, without them many of us wouldn't be able to cope. I am happy I found them as with the fact I am developing osteoarthritis in my knees I felt alone as no one else in my family suffers from it.
I was joyful but also sad in finding out that my two younger cousins also suffer from Joint Hypermobility, but I don't think they have been diagnosed. I would be happy if they were told they have it so they don't have to suffer like I do.
Been doing lots of walking and travelling which has taken its toll on me. Was up at Spey Bay scattering my Granda Charlie's ashes on Easter Sunday, I was in some pain that day, but luckily my Granny seen it and told me to rest at any given moment. I am glad I have my mum, granny and uncle to look after me when I am up North.
Been taking the Co-Codamol, it works for a while but occasionally doesn't last very long so I have about a couple of hours pain to deal with before my next dose. My physio has stated that she doesn't want to up my dosage so I am not going to be addicted or anything to pain killers.
Since my physio visit, I have been doing more exercise, and well sleeping better is a great thing to. I have been referred to a exercise group to help with managing the pain. Finally something is being done to help me in any way, but still more needs to be done in Fife.
I am so far enjoying my role in helping people in Fife recognise HMS and the effects of it on others and the conditions that can occur and be part of HMS such as arthritis, scoliosis, EDS, and TMJ. I have lots to come in May, June and July, So I will be a busy bunny and sign off now and I look forward to updating you all next time.
Pamela
x
During the time I was waiting the pain has been coming and going, worst of it is, the pain in my knees now affect me more, I get sore just walking down the stairs to the living room, when I was standing still and when I am sitting at the PC.
Pain is starting to develop in my right elbow and my fingers with the amount of typing I am doing, trying to raise the awareness of Joint Hypermobility Syndrome in Fife and Grampian as many of us are left on our own to deal with the pain. Been in preparation for the Women's 5K Challenge in which I will be raising money for Arthritis Care, without them many of us wouldn't be able to cope. I am happy I found them as with the fact I am developing osteoarthritis in my knees I felt alone as no one else in my family suffers from it.
I was joyful but also sad in finding out that my two younger cousins also suffer from Joint Hypermobility, but I don't think they have been diagnosed. I would be happy if they were told they have it so they don't have to suffer like I do.
Been doing lots of walking and travelling which has taken its toll on me. Was up at Spey Bay scattering my Granda Charlie's ashes on Easter Sunday, I was in some pain that day, but luckily my Granny seen it and told me to rest at any given moment. I am glad I have my mum, granny and uncle to look after me when I am up North.
Been taking the Co-Codamol, it works for a while but occasionally doesn't last very long so I have about a couple of hours pain to deal with before my next dose. My physio has stated that she doesn't want to up my dosage so I am not going to be addicted or anything to pain killers.
Since my physio visit, I have been doing more exercise, and well sleeping better is a great thing to. I have been referred to a exercise group to help with managing the pain. Finally something is being done to help me in any way, but still more needs to be done in Fife.
I am so far enjoying my role in helping people in Fife recognise HMS and the effects of it on others and the conditions that can occur and be part of HMS such as arthritis, scoliosis, EDS, and TMJ. I have lots to come in May, June and July, So I will be a busy bunny and sign off now and I look forward to updating you all next time.
Pamela
x
Monday, April 4, 2011
Sore today but done my jobs :)
Well, I am in some pain today. No Idea why, I have been resting but walking (if you get me).
Knees are sore as today, rest of me is fine :/, just entered the Adidas 5K Challenge raising money for Arthritis Care :). I am hoping to raise £300 so get digging folks :).
I have just felt so tired today and cold even though it is actually a warm day. Damn HMS. But never mind, I fell asleep just after I started writing this blog (whoops) and well, I suppose it gave my hands/wrists a rest first lol.
Had another nosebleed today (had 2 yesterday), wasn't very happy at that as I hate seeing blood. Blew my nose and it stopped, I think I will do that from now on :).
Any ways to my jobs, I sent STV, Aberdeen Evening Express and The Press & Journal a email to ask for their support in Raising awareness of Joint Hypermobility Syndrome. Just waiting for replies, I hope one of them does pick up the story and help (preferably STV), I am also getting in touch with the Fife Herald and Fife Free Press as well.
Well hands are starting to hurt, so I think I will leave this blog the now and possibly do one tomorrow if the pain isn't here.
Chow for now folks.
Pamie
x
Knees are sore as today, rest of me is fine :/, just entered the Adidas 5K Challenge raising money for Arthritis Care :). I am hoping to raise £300 so get digging folks :).
I have just felt so tired today and cold even though it is actually a warm day. Damn HMS. But never mind, I fell asleep just after I started writing this blog (whoops) and well, I suppose it gave my hands/wrists a rest first lol.
Had another nosebleed today (had 2 yesterday), wasn't very happy at that as I hate seeing blood. Blew my nose and it stopped, I think I will do that from now on :).
Any ways to my jobs, I sent STV, Aberdeen Evening Express and The Press & Journal a email to ask for their support in Raising awareness of Joint Hypermobility Syndrome. Just waiting for replies, I hope one of them does pick up the story and help (preferably STV), I am also getting in touch with the Fife Herald and Fife Free Press as well.
Well hands are starting to hurt, so I think I will leave this blog the now and possibly do one tomorrow if the pain isn't here.
Chow for now folks.
Pamie
x
Wednesday, March 30, 2011
Monthly blog for March
WEDNESDAY, 2 MARCH 2011
Living With HMS/Arthritis
I have had arthritis since I was 9 years old in my right collar bone after fracturing it. The pain in it is mild and doesn't really bother me unless I do a lot of writing, or exercise.
Last year I was diagnosed with Hypermobility Syndrome, this was after I was complaining of pain in the areas where I am double jointed. I was told when I was younger that I was double jointed, but after a visit to the physiotherapist last year she informed me I was in fact suffering from Hypermobility Syndrome (known as HMS), a far diagnosis from the Carpal Tunnel Syndrome my GP diagnosed.
Last year I was diagnosed with Hypermobility Syndrome, this was after I was complaining of pain in the areas where I am double jointed. I was told when I was younger that I was double jointed, but after a visit to the physiotherapist last year she informed me I was in fact suffering from Hypermobility Syndrome (known as HMS), a far diagnosis from the Carpal Tunnel Syndrome my GP diagnosed.
At the moment, I am currently taking strong paracetamol that you buy in stores as most strong pain killers either give me bad side effects or interact with other medication I am taking. I also suffer from anxiety, and as the pain is mostly on my left side it doesn't help my anxiety a lot, so I take quite a few anxiety attacks when the pain is very bad.
So now I am waiting to see the physiotherapist again, I am moving to Aberdeen in August to attend Aberdeen College. I am hoping that my pain is manageable for when I start as I will be living away from home.
So now I am waiting to see the physiotherapist again, I am moving to Aberdeen in August to attend Aberdeen College. I am hoping that my pain is manageable for when I start as I will be living away from home.
THURSDAY, 3 MARCH 2011
As if today couldn't get any worse. My pain in my knee's has flared up.
As the picture shows, my right knee is considerably swollen, my left is slightly swollen.
In soo much pain today its unreal. I can't walk very far today and I think I need to keep my legs elevated for a little bit.
Haven't felt this much pain in a while. It's weird. One day I can be up and running around, the next day I'm laid up in bed with agonising pain, I have to say the pain I am feeling today is a tight aching pain in both my knees, left is more prominent than the right, normally the pain is dull and aching. As my pain meds cause constipation, and I am pretty bunged up at the moment, I can't take them, so up to Paracetamol and Diclafenic.
As the picture shows, my right knee is considerably swollen, my left is slightly swollen.
In soo much pain today its unreal. I can't walk very far today and I think I need to keep my legs elevated for a little bit.
Haven't felt this much pain in a while. It's weird. One day I can be up and running around, the next day I'm laid up in bed with agonising pain, I have to say the pain I am feeling today is a tight aching pain in both my knees, left is more prominent than the right, normally the pain is dull and aching. As my pain meds cause constipation, and I am pretty bunged up at the moment, I can't take them, so up to Paracetamol and Diclafenic.
This pain is really doing my head in today, I need to be fine for Saturday 12th as will be going to Paisley to see my beloved Aberdeen Football Club play in the Scottish Cup QF, so will be travelling 64 miles, just glad my older brother will do a rest stop in the middle.
A couple of days rest should help me, and a warm muscle soak bath tonight as well will hopefully help relieve some pain.
A couple of days rest should help me, and a warm muscle soak bath tonight as well will hopefully help relieve some pain.
THURSDAY, 10 MARCH 2011
Well, I went to my GP to ask about pain relief.
Unfortunately, I couldn't get Co-Dydramol in capsule form, so I got Co-Codamol instead. Took one this morning when I came home, and well, I fell right asleep.
So I think one tablet during the day when my pain is bad and 2 at night to help me sleep. So all in all a productive day. Pain is here, but it isn't as rough as it normally is :).
Hopefully tomorrow, pain will be either less or none at all.
Unfortunately, I couldn't get Co-Dydramol in capsule form, so I got Co-Codamol instead. Took one this morning when I came home, and well, I fell right asleep.
So I think one tablet during the day when my pain is bad and 2 at night to help me sleep. So all in all a productive day. Pain is here, but it isn't as rough as it normally is :).
Hopefully tomorrow, pain will be either less or none at all.
SATURDAY, 12 MARCH 2011
Yes, I know I maybe should have blogged this when I got the news, but due to being rather busy with my health, I have been delayed.
Well, I was accepted into Aberdeen College to study HND Communications with Media. I must have made an impression at the interview. Any way. I have a lot to do. I have so far got my accommodation sorted and figured out what I am going to do when I get there.
I don't know when my induction day is yet, I hope I hear about it soon. I am very excited about it all and well, I know my Granda Charlie would be proud of me following my dream, in the meantime, I am trying to get more experience in media, I have applied to work with Arthritis Care (which is why I am making this blog now) in their media department, just be writing blogs about my plight with OA and HMS. Also I am being given the chance to propose some editorials too.
I have just emailed both Queen Margaret Hospital and Aberdeen Royal Infirmary enquiring about Hospital Radio volunteering positions, I would probably be better off in Aberdeen with moving there in August. Travelling to and from Aberdeen from Fife will be tiring, but I am used to it.
Well, this is all I can really say at the moment, but I will let you all know if I get anywhere with the Hospital Radio positions and the Arthritis Care blogging.
Later guys!
Pamie
Well, I was accepted into Aberdeen College to study HND Communications with Media. I must have made an impression at the interview. Any way. I have a lot to do. I have so far got my accommodation sorted and figured out what I am going to do when I get there.
I don't know when my induction day is yet, I hope I hear about it soon. I am very excited about it all and well, I know my Granda Charlie would be proud of me following my dream, in the meantime, I am trying to get more experience in media, I have applied to work with Arthritis Care (which is why I am making this blog now) in their media department, just be writing blogs about my plight with OA and HMS. Also I am being given the chance to propose some editorials too.
I have just emailed both Queen Margaret Hospital and Aberdeen Royal Infirmary enquiring about Hospital Radio volunteering positions, I would probably be better off in Aberdeen with moving there in August. Travelling to and from Aberdeen from Fife will be tiring, but I am used to it.
Well, this is all I can really say at the moment, but I will let you all know if I get anywhere with the Hospital Radio positions and the Arthritis Care blogging.
Later guys!
Pamie
MONDAY, 14 MARCH 2011
Well, the past few days I have been trying to cope with some low mood and pain.
Last week, mainly Thursday and Friday, I was feeling my lowest since my Granda Charlie's passing. I think the adrenaline of all good that happened had worn off as I was beginning to feel that nothing was moving forward again.
My knee and elbow pain has been increasingly annoying of late. Not so much sore, but more annoying, the pain hasn't been throbbing or anything else, just well, there when it shouldn't be. Swelling in my knees hasn't been much, but my left elbow has been somewhat swollen the past two days.
On Saturday, I ended up missing the St Mirren v Aberdeen match in Paisley due to the road conditions, I think after having two scares on the M8, my mood has been low because of the near experiences I had that day, but I am glad we managed to turn around and come home. Heading to the replay at Pittodrie on Wednesday.
I have, however, got one appointment to look forward to, on Thursday I will be heading to Aberdeen once again to visit the Grampian Hospital Radio at Ashgrove House which is at the Aberdeen Royal Infirmary. I filled out the application form and posted it today, I hope I get somewhere with this as it would be great for me and my experience I want to gain to help my career in Journalism.
I am hoping that my mood can at least improve by then. I want to make a really good impression at Ashgrove House and show them I want to have a career in Broadcast Journalism. Portfolio is ready and well, I don't know if I should email Kingdom FM to see if they still have the bulletin I recorded, I doubt they will, but I suppose it is worth an ask.
Well, I shall leave you all now to take a moment on my words tonight. I shall let you all know how my visit to Ashgrove House went.
Pamie
x
WEDNESDAY, 16 MARCH 2011
Well today has been fun.
 |
| Prepared for the match |
I went to see Aberdeen play St Mirren (or St Midden as we dandies call them lol) at Pittodrie. A 7.45pm kick off was annoying though.
Well, the car journey to Dundee wasn't too bad on my knees, I am glad my dad moved the chair forward to give me more room in the back as I normally don't sit in the back of the car due to my knee pain (I only sit in the back when the 4 of us are out).
Did a lot of physio exercises when I was waiting for the train, people must have thought I was bonkers, but hey ho. I support Aberdeen so I kinda think that says enough on that part haha. I am glad I did as well, an hour and a half on a train, even though I can get up and walk is hard on my knees. Also sitting in a Stadium where it's baltic isn't exactly the best place to be either but for some odd reason, the exercises seemed to minimalise a lot of pain I would normally have from being at a match.
Just got to do it all again tomorrow, but at least this time I aint sitting for 90+ minutes in a football stadium lol. So I should sleep, but I can't with excitement. So much good stuff is happening now, I hope Grampian Hospital Radio will keep it going.
So I shall sign off for today and well I will tell you tomorrow about any pain and my daily day.
Pamie
X
THURSDAY, 17 MARCH 2011
After dicing with my meds (I don't know if dicing is the right word), I decided against taking co-codamol this morning, however, pain in my elbow and knees is becoming alive, so had taken two tabs before leaving Aberdeen on the train. Had to wait for it to leave, I totally hate waiting, heck how am I going to manage as a journalist haha.
Decided to munch away at the chocolate brownie I bought in Dundee. I have to say I will soooo be buying it again, it was DELICIOUS. You know apart from the pain home, it was relativly pain free :). But I have now really changed my outlook on Aberdeen (in time I suppose lol). I need to arrange with Martin and a few other peeps soon.... Night out in Aberdeen anyone?. At least Mike won't have to overly worry about me when I am living there as I do have a lot of friends there :).
Well I shall sign off, and I am again glad to share my day with you all, I hope you all look forward to tomorrow, I know I am. =)
Pamie
x
Pamie
x
WEDNESDAY, 30 MARCH 2011
Well, after careful consideration with my HMSA Group leader Moira, we decided more needs to be done for us HMS sufferers in Fife.
We are going to press, TV, radio and well anyone I can think of to try and raise the awareness of HMS. There is a centre in Glasgow which specialises in HMS, but none of our doctors will refer us to it. We all feel that we are being pushed from pillar to post and not getting the service we deserve.
HMS is a chronic pain condition and one day we can be fine the next we are in constant pain. Many sufferers need aids to walk, painkillers and other medication, I am on 2 different medications for my HMS and I can assure you, I have only managed to get it with constant bugging of my GP. Anyways, one of the reasons I am being involved in this is because I am myself being dumped here there and anywhere by NHS Fife.
Last year I was finally diagnosed with HMS and because I wasn't in too much pain, my physio didn't refer me to rhumatology to get checked, but since then my pain worsened, so I went to see my GP and she referred me. I waited nearly a year before I chased it up, mainly because the pain was managable, but gradually getting worse, by January 2011, I was getting fed up of waiting, so I saw my GP and found out the they wouldn't see me because I wasn't referred by the physio. I was disgusted at how this was handled, I wasn't informed of anything by my surgery OR the Victoria Hospital, I feel the NHS has failed me on this part, here I am in genuine pain and I cannot see anyone to get the proper treatment. How many more of us are going through this?
We are going to press, TV, radio and well anyone I can think of to try and raise the awareness of HMS. There is a centre in Glasgow which specialises in HMS, but none of our doctors will refer us to it. We all feel that we are being pushed from pillar to post and not getting the service we deserve.
HMS is a chronic pain condition and one day we can be fine the next we are in constant pain. Many sufferers need aids to walk, painkillers and other medication, I am on 2 different medications for my HMS and I can assure you, I have only managed to get it with constant bugging of my GP. Anyways, one of the reasons I am being involved in this is because I am myself being dumped here there and anywhere by NHS Fife.
Last year I was finally diagnosed with HMS and because I wasn't in too much pain, my physio didn't refer me to rhumatology to get checked, but since then my pain worsened, so I went to see my GP and she referred me. I waited nearly a year before I chased it up, mainly because the pain was managable, but gradually getting worse, by January 2011, I was getting fed up of waiting, so I saw my GP and found out the they wouldn't see me because I wasn't referred by the physio. I was disgusted at how this was handled, I wasn't informed of anything by my surgery OR the Victoria Hospital, I feel the NHS has failed me on this part, here I am in genuine pain and I cannot see anyone to get the proper treatment. How many more of us are going through this?
So what I did was set up an online petition, and a paper petition for the HMSA Fife Group to get more help in our area. I made the petition on Saturday 26th March and so far have collected 109 signatures. I am hoping this will rise. If you would like to help us sufferers get the treatment, information and appointments available to us then please sign it. The link is: http://www.gopetition.com/petition/44197.html.
If you do sign it, please comment on why you are signing the petition and thank you very much from the HMSA Fife Group.
Well that's it for March, I hope April is kinder to me with the pain. See you later folks.
Pamie
x
If you do sign it, please comment on why you are signing the petition and thank you very much from the HMSA Fife Group.
Well that's it for March, I hope April is kinder to me with the pain. See you later folks.
Pamie
x
Monday, March 21, 2011
Feeling Awful - 22nd March
Well little old arthur has been on the rise today.
Left knee has been in so much pain today, but with me having problems with some other things I haven't been able to take the Co-Codamol, so been on normal Paracetamol.
I am STILL waiting on my appointment for Physio so I can finally get this whole fiasco sorted. Being in pain is NOT fun, especially when you want to have an active lifestyle, I have been bed ridden more now than ever before due to the arthritis. I feel more depressed and low.
I suppose I still have the email from when I told NHS Fife days I were available, which kinda has to change now I help at GHR and Arthritis Care, oh well, I hope that the 18 week rule applies here for waiting lists. I may need to look into that as I am sure it has been nearly 2 months since I was referred, so if I hear nothing by May I will be having a moan. It doesn't help waiting as I will be moving in August to Aberdeen, probably be quicker being seen up there, but I can't wait any longer.
I think a warm bath is in order to give my aching muscles a good soak, unfortunately it is nearly 2am so I don't think my mum, dad and older brother would appreciate being woken up by me having a bath haha, so tomorrow night I will give them the soak they deserve :).
Hope you are all pain free today, if not tell the begga to naff off :D. Chow!
Pamie
x
Left knee has been in so much pain today, but with me having problems with some other things I haven't been able to take the Co-Codamol, so been on normal Paracetamol.
I am STILL waiting on my appointment for Physio so I can finally get this whole fiasco sorted. Being in pain is NOT fun, especially when you want to have an active lifestyle, I have been bed ridden more now than ever before due to the arthritis. I feel more depressed and low.
I suppose I still have the email from when I told NHS Fife days I were available, which kinda has to change now I help at GHR and Arthritis Care, oh well, I hope that the 18 week rule applies here for waiting lists. I may need to look into that as I am sure it has been nearly 2 months since I was referred, so if I hear nothing by May I will be having a moan. It doesn't help waiting as I will be moving in August to Aberdeen, probably be quicker being seen up there, but I can't wait any longer.
I think a warm bath is in order to give my aching muscles a good soak, unfortunately it is nearly 2am so I don't think my mum, dad and older brother would appreciate being woken up by me having a bath haha, so tomorrow night I will give them the soak they deserve :).
Hope you are all pain free today, if not tell the begga to naff off :D. Chow!
Pamie
x
Saturday, March 19, 2011
Saturday 19th March 2011
Didn't leave the house today.
Had little pain in my knees but LOTS in my left elbow. Also due to the amount of Co-Codamol (at my daily dose limit) I have slept most of today.
Just hope tomorrow I don't suffer from not doing anything today as that is normally what happens. I still need to get pictures taken, will get my brother onto it later with dad's camera.
So unfortunately that is today's blog. Sorry I don't have much to say today. Hopefully tomorrow will be more interesting.
Night followers/readers.
Pamela Anne aka Pamie
x
Had little pain in my knees but LOTS in my left elbow. Also due to the amount of Co-Codamol (at my daily dose limit) I have slept most of today.
Just hope tomorrow I don't suffer from not doing anything today as that is normally what happens. I still need to get pictures taken, will get my brother onto it later with dad's camera.
So unfortunately that is today's blog. Sorry I don't have much to say today. Hopefully tomorrow will be more interesting.
Night followers/readers.
Pamela Anne aka Pamie
x
Friday, March 18, 2011
Pain? No! Yes! A Little!
Pain - A human's worst enemy, be it a wound, cut, sprain, break, fracture. No one wants it really. Arthritis is exempt from that cluster of pain as its here to stay.
Many of arthritis sufferers take medication to help with their pain, many try therapy, massages and acupuncture. Me however, I have decided on medication AND therapy, hitting the pain in all areas then.
I have two blogs on my other blog about a few pain days, here are the links to these blogs:
http://pamieafc1903.blogspot.com/2011/03/fun-day-with-mild-pain.html
http://pamieafc1903.blogspot.com/2011/03/in-lot-of-pain-today.html
Also here is the link to my blog about living with HMS and Arthritis:
http://pamieafc1903.blogspot.com/2011/03/living-with-hypermobility.html
And here is one on coping with my daily activities at the moment:
http://pamieafc1903.blogspot.com/2011/03/trying-to-cope.html
I will post pictures of my Hypermobility as this is where I have the arthritis, I will show how my left knee is mostly filled with fluid in the pictures.
I will comply my blogs shown above into my monthly round up blog, along with any other blogs I make in the time being. Thanks for reading guys!
Pamela Anne aka Pamie
x
Many of arthritis sufferers take medication to help with their pain, many try therapy, massages and acupuncture. Me however, I have decided on medication AND therapy, hitting the pain in all areas then.
I have two blogs on my other blog about a few pain days, here are the links to these blogs:
http://pamieafc1903.blogspot.com/2011/03/fun-day-with-mild-pain.html
http://pamieafc1903.blogspot.com/2011/03/in-lot-of-pain-today.html
Also here is the link to my blog about living with HMS and Arthritis:
http://pamieafc1903.blogspot.com/2011/03/living-with-hypermobility.html
And here is one on coping with my daily activities at the moment:
http://pamieafc1903.blogspot.com/2011/03/trying-to-cope.html
I will post pictures of my Hypermobility as this is where I have the arthritis, I will show how my left knee is mostly filled with fluid in the pictures.
I will comply my blogs shown above into my monthly round up blog, along with any other blogs I make in the time being. Thanks for reading guys!
Pamela Anne aka Pamie
x
Thursday, March 17, 2011
Introduction - Me & why I am blogging about Living With Arthritis
Well, I would like to welcome you all to my new blog, Living With Arthritis. I am going to tell you a little bit about myself and why I am making these blogs.
First of all my name is Pamela Anne, I get called Pamie by my friends and family, I am 26 years old and currently living in Fife with my parents and older brother. I am currently unemployed but have recently been accepted into Aberdeen College to study HND Communication with Media.
Well, I suppose I should tell you all why I am doing these blogs. Back when I was born on the 1st February 1985, my mum and dad was told I was double jointed, other wise known as Hypermobile. Hypermobile is a condition where I can over stretch certain joints/area's of my body, in my case, my elbows, knees and back, I have also recently found out I am hypermobile in both my wrists. As the years went on I was rarely bothered by my Hypermobility, and well, I experienced little pain (only when I cracked the joint etc) and wasn't really aware of it all. However, in 2009, 1 year after I was diagnosed with Anxiety and Depression, I fell very badly on my left side and I hurt my elbow, it was in 2010, when I was seeing my physiotherapist about the pain, that I was diagnosed with having Hypermobility Syndrome, this was after I said I had also experienced pain in my knees, other elbow and back. So from then on I went on a research crusade and found out what could happen to me. On my last appointment with the physio, she said I was most likely developing Osteoarthritis, to which I had no clue about, again I went on the search on the Internet and found Arthritis Care.
I immediately joined the Arthritis Care forum and well, explained what was what, and to my surprise, no one knew anything about Hypermobility Syndrome (known as HMS) and its links to Osteoarthritis. So I found myself telling them about the links and pains I was going through, it was then I thought something needed to be shown about the links of the two. So I emailed Arthritis Care Scotland to ask if I could volunteer, first of all I had to fill a form out to indicate which areas I knew of etc then I had a wonderful email back from Melanie and from then on we discussed what I would like to do. As I told her I was interested in a career in Journalism, and that I generally blogged about my pain and tough times ahead in my life with my anxiety and bullying it was suggested I write about my general life and day to day dealings of living with this horrible illness.
So here I am, finally letting people out there know about the links between Hypermobility Syndrome and Arthritis, as I attend a HMSA group, I may be asking my leader if I can conduct interviews and/or research to how others have coped with the pain and "impending doom" as I call it. I have to say, many people think arthritis is a old persons disease, I can tell you this, it is not.
Well, I think my intro is long enough, I do not with to bore you before I have even started, I hope you all enjoy my blogs and I look forward to hearing from anyone soon about what I have written.
Pamela Anne aka Pamie
x
 |
| Me - 16/03/2011 |
Well, I suppose I should tell you all why I am doing these blogs. Back when I was born on the 1st February 1985, my mum and dad was told I was double jointed, other wise known as Hypermobile. Hypermobile is a condition where I can over stretch certain joints/area's of my body, in my case, my elbows, knees and back, I have also recently found out I am hypermobile in both my wrists. As the years went on I was rarely bothered by my Hypermobility, and well, I experienced little pain (only when I cracked the joint etc) and wasn't really aware of it all. However, in 2009, 1 year after I was diagnosed with Anxiety and Depression, I fell very badly on my left side and I hurt my elbow, it was in 2010, when I was seeing my physiotherapist about the pain, that I was diagnosed with having Hypermobility Syndrome, this was after I said I had also experienced pain in my knees, other elbow and back. So from then on I went on a research crusade and found out what could happen to me. On my last appointment with the physio, she said I was most likely developing Osteoarthritis, to which I had no clue about, again I went on the search on the Internet and found Arthritis Care.
I immediately joined the Arthritis Care forum and well, explained what was what, and to my surprise, no one knew anything about Hypermobility Syndrome (known as HMS) and its links to Osteoarthritis. So I found myself telling them about the links and pains I was going through, it was then I thought something needed to be shown about the links of the two. So I emailed Arthritis Care Scotland to ask if I could volunteer, first of all I had to fill a form out to indicate which areas I knew of etc then I had a wonderful email back from Melanie and from then on we discussed what I would like to do. As I told her I was interested in a career in Journalism, and that I generally blogged about my pain and tough times ahead in my life with my anxiety and bullying it was suggested I write about my general life and day to day dealings of living with this horrible illness.
So here I am, finally letting people out there know about the links between Hypermobility Syndrome and Arthritis, as I attend a HMSA group, I may be asking my leader if I can conduct interviews and/or research to how others have coped with the pain and "impending doom" as I call it. I have to say, many people think arthritis is a old persons disease, I can tell you this, it is not.
Well, I think my intro is long enough, I do not with to bore you before I have even started, I hope you all enjoy my blogs and I look forward to hearing from anyone soon about what I have written.
Pamela Anne aka Pamie
x
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