Well, I would like to say that a lot has happened since my last blog. I was finally given a physiotherapist appointment which was on the 3rd May.
During the time I was waiting the pain has been coming and going, worst of it is, the pain in my knees now affect me more, I get sore just walking down the stairs to the living room, when I was standing still and when I am sitting at the PC.
Pain is starting to develop in my right elbow and my fingers with the amount of typing I am doing, trying to raise the awareness of Joint Hypermobility Syndrome in Fife and Grampian as many of us are left on our own to deal with the pain. Been in preparation for the Women's 5K Challenge in which I will be raising money for Arthritis Care, without them many of us wouldn't be able to cope. I am happy I found them as with the fact I am developing osteoarthritis in my knees I felt alone as no one else in my family suffers from it.
I was joyful but also sad in finding out that my two younger cousins also suffer from Joint Hypermobility, but I don't think they have been diagnosed. I would be happy if they were told they have it so they don't have to suffer like I do.
Been doing lots of walking and travelling which has taken its toll on me. Was up at Spey Bay scattering my Granda Charlie's ashes on Easter Sunday, I was in some pain that day, but luckily my Granny seen it and told me to rest at any given moment. I am glad I have my mum, granny and uncle to look after me when I am up North.
Been taking the Co-Codamol, it works for a while but occasionally doesn't last very long so I have about a couple of hours pain to deal with before my next dose. My physio has stated that she doesn't want to up my dosage so I am not going to be addicted or anything to pain killers.
Since my physio visit, I have been doing more exercise, and well sleeping better is a great thing to. I have been referred to a exercise group to help with managing the pain. Finally something is being done to help me in any way, but still more needs to be done in Fife.
I am so far enjoying my role in helping people in Fife recognise HMS and the effects of it on others and the conditions that can occur and be part of HMS such as arthritis, scoliosis, EDS, and TMJ. I have lots to come in May, June and July, So I will be a busy bunny and sign off now and I look forward to updating you all next time.
Pamela
x
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